Since the release of The Untold Story of Kim, I’ve made some new friends and fans who suffer from the insidious syndrome. I’ve also spent some time perusing Facebook looking for like-minded people. Often those who suffer debilitating pain feel alone and don’t know where to turn. These great FB places can help you to learn more about RSD/CRPS, share your story, or offer a friendly voice.
Some are pages you can “Like”, and some are groups you can join. Go and give them a Like or join up with others just like you.
Reflex Sympathetic Dystrophy Association
RSDSA promotes awareness of CRPS, funds research towards more effective treatments and a cure, and supports individuals with CRPS.
https://www.facebook.com/RSDSA?ref=br_tf
Invisible Disabilities Association
The Invisible Disabilities Association (IDA) IDA’s Mission is to Encourage, Educate and Connect People and Organizations Touched by Illness, Pain and Disability Around the Globe!
https://www.facebook.com/InvisibleDisabilities/info
RSD aka Really Sucks Dystrophy
Complex regional pain syndrome · Reflex Sympathetic Dystrophy Syndrome ·Chronic pain
This is a community (Group) to share with fellow sufferers of RSD/CRPS
RSD/CRPS Friends In Pain
Welcome and thank you for visiting my page! I created this in order to help give inspiration and hope, by using quotes, stories and links, to people with not only RSD/CRPS, but also other chronic pain disorders!!
https://www.facebook.com/RSDFriendsinPain
RSD/CRPS Doesn’t Own Me
Our mission is to remind people with RSD/CRPS that life is still worth living. We want to offer support, stories of hope, and encouragement to fellow RSD/CRPS Angels. It is our hope to raise RSD/CRPS awareness that will help others understand the seriousness of this disease.
https://www.facebook.com/CRPSDOM
Chronic Regional Pain Syndrome (a.k.a. Reflex Sympathetic Dystrophy)
This group is for those who have CRPS, and for those who know someone with CRPS that want to better understand what they are dealing with.
https://www.facebook.com/groups/CRPS.RSD/
rsdcrpssociety
A small, intimate group with lots of interaction. You’ll find friends here.
https://www.facebook.com/groups/rsdcrpssociety/
If you have not read The Untold Story of Kim, the Kindle version is available at Amazon for just 2.99.
Paperback will be available very soon.
Thank you